Wednesday, May 29, 2013

Post from the day before Jim died

Wednesday the 29th of May...The season officially started over the weekend and the traffic was heavy even thought the weather was chilly.
 All's quiet here this morning. Only 1 appointment at the wound center this afternoon at 2. The wound is 80% healed. Once all the slough is removed, they will work on a closure.
 The C diff is really the main issue now. I met with the Nurse Practitioner at dialysis yesterday and she administered some vancomycin in his IV. It may have helped as he ate a little dinner last night.
 I am also looking into assistance programs for medical help, especially for prescriptions. Over the weekend I spent $500 on pads, depends, and meds...even with insurance part d, We really can't afford that.
 I've made some progress with the patio plants and have been trying to get the front started. My 12 year old crew quit on me, so the pool is down, empty and sitting in a big clump on the sand. If i could get a few adults to help, I think we could flatten it and roll it up now that it is dry. Actually, if I had a power washer and some help I could really clean it up and pack it in the bag,  but that is just dreaming at this point..
 So, the dirt therapy is working except it is extremely tiring for me but better than standing still.
 I am going to a luncheon/lecture for caregivers in Milford on the 7th and am hoping to hook up with a support group
  I am juggling as fast as I can but I can feel the balls starting to slip.
It is so difficult to be responsible for everything...I know the car needs service but when can I get that done?
My taxes in Baltimore will be due in July, as well as the car insurance here. I need to pay my personal income tax from 2011, and 12.
 It has been hard to deal with these ailments with no one coordinator in charge. Dr. Gordon, the plastic surgeon has nothing to do with the C diff. Dr. Sharman, the primary referred us to an infectious disease specialist at Beebe who can't see us until July. The Nurse/P at dialysis can only treat Jim 3 X a week with the vancomycin IV which is the only thing that seems to work for him. The oral medication costs $1600 for a 10 day supply. I almost took him to the ER yesterday just so they would get that department involved sooner.
  The AFLAC insurance has been a Godsend, but come August it will be 1 year which is the limit. I am also looking for Medicaid assistance.
 So , how is your day so far....

No comments: